Endometriosis Working Group

Endometriosis

House Bill 6672 - AN ACT CONCERNING ENDOMETRIOSIS.

For those with endometriosis, endometrial-like tissue grows outside the uterus. Nearby reproductive organs are often affected but the disease has been found in every major organ system. Tissue can grow on or around a person’s ovaries, fallopian tubes, and beyond. Tissue growth can also spread to other organs, even if they’re not related to reproduction. Some people have endometriosis on or around their bowels, rectum, bladder and, in some cases, tissue may spread as far as the chest cavity.

Beyond the physical pain that over 194 million individuals with the endometriosis experience, those suffering from the disease are often misdiagnosed, told the pain is normal, or accused of making up their symptoms. The Endometriosis Working Group has announced several priorities to create greater awareness and expand access to care.

Priorities Include:

Establishment of Connecticut’s Endometriosis Biorepository
School Nurse Training
Fertility Preservation
Fertility Specialist Training and Screening
Education for Students
Menstrual Equity
Access to Medical Care

Join the Endometriosis Working Group by emailing Chandra Persaud, Legislative Aide to Rep. Gilchrest, at Chandra.Persaud@cga.ct.gov

In the News

July 31, 2023

Why CT lawmakers are tackling endometriosis, a uterine disease that affects 1 in 10

June 8, 2023 - Medical Press

Connecticut legislature approves historic endometriosis bill

March 5, 2023 - Yale News
As endometriosis bills reach CT state assembly, patients and doctors weigh in
Patients, doctors and a state representative spoke on the future of endometriosis advocacy and action in Connecticut.

February 1, 2023 - Rep. Jillian Gilchrest
Endometriosis Data and Biorepository Program Plan Submitted to the Public Health Committee

December 26, 2022 - UConn Health
UConn Health & The Jackson Laboratory For Genomic Medicine Report To The Public Health Committee To Develop A Plan To Establish An Endometriosis Data And Biorepository Program

December 7, 2022 - CT Mirror
Endometriosis and the barriers to care